 |
|||
|
|||
|
Diagnosed with cervical cancer and must have a hysterectomy  I have had 3 abnormal PAPS and 3 colposcopies due to HPV. The most recent colposcopy came back abnormal so my doctor scheduled a LEEP. My doctor was expecting to remove abnormal cells and let my immune system take over to kill the rest of the HPV that might still be there. Since I have a back condition and a back fusion, my doctor and I had discussed that it would be in the best interest of me and any possible child that I would not have children. So during the LEEP she decided to remove more cervical tissue than she normally would on a 35 year old that had never had children. She found cancer. Stage 1a1 cervical cancer. I now have to have a hysterectomy, uterus and cervix. It will be vaginally and laproscopicly unless I have internal scar tissue from my back fusion. My GY oncologist is giving me the decision if I want to keep my ovaries or not. I also have to decide if the surgery will be done by my usual OB/GYN or the GY oncologist. I?m worried about whether to have them take my ovaries or keep them. I?m worried about which doctor to have do the surgery. I?m worried about sex after the hysterectomy. I?m worried about my bladder. They said I could have incontinence after surgery if my bladder is damaged during surgery. |
|
||||
|
||||
|
Re: Diagnosed with cervical cancer and must have a hysterectomy  I'm very sorry you're dealing with all of this. I had cervical adenocarcinoma IAI and was treated with a rad/hyst. Due to my previous cancer history (melanoma) we did go ahead and remove ovaries as well. Most of the time, ovaries are left with cervical cancer. It is a tough decision for sure. Do your research, get as many opinions as you need, then do what you feel is best for yourself long term. As far as who to have perform the surgery, however, there's no question I'd go with the gyn/onc. They're the experts and would best be prepared in the (unlikely) event there are any surprises during the procedure. I'm sure if it were your gyn in this situation, she'd be having a gyn/onc do her surgery. It's no reflection on her, after all. It's about your receiving the best treatment possible. After surgery, I was sent home with a catheter until my post-op appointment. I've had no bladder complications whatsoever. I have had constipation issues which I'd never had before, but I've been able to manage that. And, the experience with sexual function varies a bit with each sister. Some ladies say there is little change, while others do have more complicated issues. But, try not to worry so very much about those "down the road" issues right now. One step at a time! You can do this, AustinRhea! We're glad you found us!
|
|
|||
|
|||
|
Re: Diagnosed with cervical cancer and must have a hysterectomy Hi, I know just how scary it is to be given a cancer diagnosis. You are asking great questions and it is understandable the concerns that you have. I am not a healthcare professional so the answers I will give you are strictly my opinion. I do not have cervical cancer. I have Endometrial Stromal Sarcoma, Stage 2b. I had a LAH and BSO, lymph node bx and pelvic washing. Cancer was found after my hysterectomy in a fast growing fibroid. It was also found in my left ovary and tube. Different cancer from yours and my cancer grows with estrogen so the ovaries out was a MUST for me. Ask your doctors to explain the risk of recurrence if you leave your ovaries in. For cervical cancer there may not be a risk. 100% yes a GYN ONC should do the surgery OR assist the GYN. If you are absolutely sure you do not want kids do the hysterectomy. There is another procedure though called radical trachelectomy that can save your uterus and you could stilll have children. As far as ovaries go you are young and if the GYN ONC says it is safe to keep the ovaries then keep them and avoid surgical menopause. If you keep your ovaries you should not have problems with sex after you completely heal from a hysterectomy. I had a hysterectomy and ovaries removed. I also take oral treatment to prevent estrogen from producing from my adrenal glands (this is to help prevent a recurrence for my type of cancer) and I do have the vaginal dryness that comes from NO estrogen but I use special lubricants and we just take it slow and gentle. I have the same physical reactions as before surgery. You will too. The key is to relax. Tension and stress can increase pain in the pelvis. Do not worry about your bladder. Do you have any problems now? I had minor issues before my surgey because my uterus was so enlarged. Now a year later all those issues have gone away. I do not even need a panty liner anymore. It can take a very long time for some woman to heal from surgery. I was so worried I would never feel good again. It just took me a lot longer than I expected. Try to remember that after your surgery that your body has been thru a trauma and needs time to adjust. Everything is new and scary right now. Your fears are normal. Write down all your questions for the doctor and take someone with you on your visits so you can have an extra set of eyes and ears with you. Take notes too. Knowledge is power and the more you learn about your particular cancer and its treatment the easier it will become to adjust to the diagnosis. You will forever be a "survivor" now. You can do this you will find strength and courage you never thought you had. |
|
|||
|
|||
|
Re: Diagnosed with cervical cancer and must have a hysterectomy I can cry reading this!!! I know what hell it is to go through this. I'm a little older - 49 - and already have 2 kids, but that in itself is hard. With 2 teenage daughters and facing whatever was going on "down there" and has a cancer spread has been hell. I started this almost 2 years ago with pap that came back abnormal glandular cells. I am HPV positive, but for YEARS had nothing at all abnormal, since college, so my regular doc had said I could go every 2 years for paps, so I waited and that next pap came back abnormal. I was terrified that I had made a mistake waiting the 2 years. Next step were the biopsies and colposcopies. Twice over the following 6 months, but regular GYN didn't find anything. He said go back to year repeat paps since probably was false positive. I refused to wait so long and said repeat in 6 months, so he agreed. Again it was atypical glandular. I asked for a hysterectomy. He said no, we should try LEEP. I said NO... Hysterectomy. So he finally split the difference with me after we both gave valid points, and went with a cone biopsy. The look on his face when he came back with results 2 weeks later scared the **** out of me. He said "it's a good thing we went ahead and did that procedure". I was insistent on cold knife excision to get the clear pathology reports which I'm very thankful I did, because it came back adenocarcinoma in situ... but "to the margin". Off to the ONC GYN. He did a second cone biopsy to see if he could get a clean margin which would determine the type of surgery I could have. He didn't find any more lesions at all so scheduled me for a "simple" hysterectomy, laparoscopic robotic-assisted. Next came the choice of ovaries. AT first I said rip them out I don't want to take any chances. But then I looked into it further. The ONC GYN pointed out that there were still some benefits of post menopausal ovaries, and studies that show that women who have ovaries out at a younger age can have a higher risk of cardiovascular disease later in life. I asked my regular GYN too, and both docs said they could support either decision and really didn't give any guidance. They both said that HPV and cervical cancer/precancer does not give you any higher risk of ovarian cancer. Since there is NO ovarian or breast cancer in my family, and there IS high blood pressure and heart disease, I decided to leave my ovaries. I would 100% go with the ONCGYN for your surgery!!!! That's what they specialize in. As far as ovaries, look into the research, and look at your family history. The other thought I had about ovaries is that once they are gone, they are gone, but if you keep them, they still can come out later. If anything changes in family history, or if I have continued problems with cysts (have in the past), I can still get them out. It was a tough decision. I had my surgery 10 days ago on Mar 15th. |
|
|||
|
|||
|
Re: Diagnosed with cervical cancer and must have a hysterectomy I don't have any bladder issues right now. I actually have no issues right now except with my back. I'm still healing from the LEEP so I can't have sex until my doctor clears me, which will hopefully be next week. Then my GY/onc will schedule the surgery for probably mid April I haven't been given any other option but the hysterectomy. I can put it off and have a child right now, or I can have the hysterectomy now. We are in no position to have a child right now, so hysterectomy it is. I was told I may have a catheter and I may not. It will all depend on the type of surgery they end up doing. With our house and pets and life I don't think I would be comfortable coming home with a catheter, but I guess I will cross that bridge if we come to it. Thanks ladies. I think I wouldn't be as worried if the surgery was already scheduled and I was ready to roll, but I have no idea when it will be and I'm antsy. It is also frustrating because I can't post any questions in Pre-Op on the boards till I have a date set. |
|
|||
|
|||
|
Re: Diagnosed with cervical cancer and must have a hysterectomy
|
|
|||
|
|||
|
Re: Diagnosed with cervical cancer and must have a hysterectomy Austin rhea, I'm so sorry you are having to deal with this. I promise you will get thru this! I'm 38 and just got the all clear yesterday. I no longer have endocervical adenocarcinoma 1A2 .. Since I have 2 children there was no doubt I was ready for the hysterectomy. As istillsmile pointed out there is the radical removal of just the cervix. Yes you can still bear children but at a much higher risk if you want that option. That's a personal issue. As far as ovaries my gyn/ onc said keep them if they look good. Your ovaries regulate many things. I kept mine. I would for sure use the gyn/ onc. Just safer that way. As far sex well can't say yet , I'm still healing. Bladder issues.... After having 2 8.5 lb babies vaginal I leaked only when my bladder was full and I did something like jump rope or jumped on a trampoline. Since my surgery I've had no problems. I only had robotic simple hyst with lymph node removal. I think the bladder issues can occur after a radical hyst but not all the time. I only had a cath for a few hours in the hospital after surgery. I have 7 dogs 5 inside so I know what u mean about coming home with a cath. Also just wanted to add I'm in a clinical trial at md Anderson in Houston . It's a conservative surgery for early stage cervical cancer. That's why I only had the simple not the radical. If you had clear margins on the last cone sounds like you would qualify. Also they did give me the option to keep my uterus if I wanted more children.. You might want to check in on that too. This clinical trial is like what they did for breast cancer lumpectomies instead of radical mastectomies for early stage breast cancer. They hope this can become a standard of treatment for early stage cervical cancer. Lots of hugs! |
|
|||
|
|||
|
Re: Diagnosed with cervical cancer and must have a hysterectomy
|
| Currently Active Users Viewing This Thread: 1 (0 members and 1 guests) | |
| ? |
Similar Threads
|
||||
| From This Forum | From Other Forums | |||
24 Replies, Last Reply 09-20-2012, Started By windmill12 3 Replies, Last Reply 09-11-2012, Started By moochdg24 14 Replies, Last Reply 07-01-2012, Started By FrodoBaggins 14 Replies, Last Reply 01-03-2012, Started By Impulsible 14 Replies, Last Reply 06-14-2010, Started By GNRBNR 14 Replies, Last Reply 08-26-2009, Started By divelynn 10 Replies, Last Reply 05-13-2008, Started By bunkeybobo 20 Replies, Last Reply 07-27-2007, Started By elefante64 15 Replies, Last Reply 04-28-2007, Started By meowth 3 Replies, Last Reply 12-20-2006, Started By darlahans 12 Replies, Last Reply 04-24-2005, Started By valerieC 11 Replies, Last Reply 01-06-2005, Started By Carrie20 25 Replies, Last Reply 06-22-2004, Started By labradorian73 27 Replies, Last Reply 12-30-2003, Started By liz109 4 Replies, Last Reply 12-04-2003, Started By Grace4Misha 3 Replies, Last Reply 08-09-2003, Started By pretty-fearless 10 Replies, Last Reply 04-26-2001, Started By Delilah |
13 Replies, Pre-Op Hysterectomy Support 11 Replies, Pre-Op Hysterectomy Support 4 Replies, Pre-Op Hysterectomy Support |
|||
Source: http://www.hystersisters.com/vb2/showthread.php?t=519894
madonna halftime show linsanity the alamo anencephaly tesla model x lou gehrig toby mac
No comments:
Post a Comment
Note: Only a member of this blog may post a comment.